Published by The Myositis Association
Since my mother’s passing, I’ve dedicated my life to advocacy, research, and storytelling. I speak about diagnostic delays, clinical bias, and the need to believe patients, especially those from underserved communities. This feature by TMA was one of the first public pieces that helped me share her story.
Read the full feature on The Myositis Association’s website »
Titled: “Turning Grief Into Purpose”
“Behind every missed diagnosis is a family holding their breath, waiting for someone to see them.”
💜 Part of the Look Mom Advocacy Project »